Sunday, July 18, 2010

You Run Like a Girl

Hello all,
I haven't spoken about fundraising in the blog before because I felt it was more important to focus on our life experiences since the girls' diagnosis. However, a unique opportunity has presented itself from some very special people and I wanted to share it with you.

My nephews and nieces in San Diego are training to run a half marathon on August 15th. All funds will go directly to the AMDA, which is a great organization supporting the Pompe community. Please see my niece Meghan's letter below. If you are able to donate, please consider employer matching funds as a way to boost the impact of your donation. Either way, please keep them in your thoughts and continue to check the blog for updates on their success. Thank you.

All for two and two for all!

Dear Family and Friends,

As most of you know, our two cousins have been diagnosed with Pompe Disease. Maddie and Emma are truly amazing individuals who live each day with joy, laughter, and dreams of what the future holds. Their vivacious character and continual strength through this process has inspired many.

In our search of understanding Pompe and the unexpected in life, we have decided to run forward and help raise money for research and improved therapies. We hope to bring awareness to Pompe Disease and to make a small difference in the lives of those who are diagnosed each year with Pompe. To help our cause, we will be running the San Diego America’s Finest City Half Marathon on August 15th, 2010. Training is in full swing and shirts are being printed for the big day!

Our goal is to raise $5,000 to improve the lives of those affected by this disease. To donate, please follow the link below. This will bring you directly to the AMDA website where the donations link is on the home page. Click on Make a Donation and follow the directions through the Paypal account. In order for the donations to go directly to Pompe Disease and to know how much is being raised, please note on the donation page that your donation is being made in regard to the Half Marathon in San Diego. You can do this by clicking the link named "Add special instructions to merchant". If you are unable to donate and in the San Diego area, please come out and help support our cause at the half marathon! Thank you so much for your constant support, prayers, and love you have shown towards the PA Crowley’s!

All for two and two for all!!
Meghan Crowley
Brendan Crowley
Joey Anderson

AMDA - Acid Maltase Deficiency Association
It is difficult to say what is impossible for the dreams of yesterday are the hopes of today and the reality of tomorrow. - Robert H. Goddard


  1. That is so fantastic! Such a heartwarming letter too. Ask them to take lots of photos on the day of the run!

  2. Good Luck to the West Coast Crowleys.

    Run Crowley Run !

    just saying