Wacky Wednesdays
WACKY: absurdly or amusingly eccentric or irrational. Here we are two nights away from the girls' first Myozyme treatment on Wednesday, April 28th. From now on they will receive treatments every other week...forever. Yes, that's forever with a capital F or as my Latin speaking friends would say "ad infinitum". While we are tentative to take this next step; we are looking forward to what awaits us. You see CHOP has developed creative ways to make their Day Medicine clinic (where the treatments will be held) a positive and fun environment. There is Musical Monday, Tiara Thursday, and for us Wacky Wednesday . So starting this Wednesday we plan to have the girls wear, share, act, sing, watch or just generally do something wacky during their treatment day to maintain a fun, upbeat spirit. Now I know a thing or two about being wacky. In fact, I have been both complimented for being wacky and punished for being wacky. The latter mostly occurred back at St. Domi