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Showing posts from February 14, 2010

Sisters, Sisters

Sisters, Sisters There were never such devoted sisters Never had to have a chaperone "No, sir" I'm there to keep my eye on her Caring, Sharing Every little thing that we are wearing All kinds of weather We stick together The same in the rain or sun Two diff'rent faces But in tight places We think and we act as one Those who've Seen us Know that not a thing could come between us On Wednesday, February 10th I received a call from the genetic counselor at CHOP with the sibling test results. She started by saying, "Well, Carter's CK enzyme levels are within the normal range at 80. However, Emma's are..." I stopped her there before she could say it and told her, "That's not the way you're supposed to say it. You're supposed to say... good news, everything is normal." But that was not the message. Emma's CK enzyme levels were at 796, very similar to Maddie's. Emma has Pompe also. Friday morning we were