Hello darkness, my old friend I've come to talk with you again Because a vision softly creeping Left its seeds while I was sleeping And the vision that was planted in my brain Still remains Within the sound of silence "Fools", said I, "You do not know Silence like a cancer grows Hear my words that I might teach you Take my arms that I might reach you" But my words, like silent raindrops fell And echoed In the wells of silence It was late 1999 when I first found myself inside that dark, silent place. A few days before I suffered a Grand mal seizure, was taken to the hospital and told I had a foreign mass in my brain and that only a MRI could confirm what it was. As I lay there, still as could be, my mind raced. I was a young father with a potential life threatening diagnosis and all I could think about is having more time to be with my wife and watch my kids grow. At the same time I was no fool. I knew that my case did not look good and that the pi...
Experiences of a family along the journey of Pompe Disease.