When you're weary Feeling small When tears are in your eyes I will dry them all I'm on your side When times get rough And friends just can't be found Like a bridge over troubled water I will lay me down Like a bridge over troubled water I will lay me down Some posts come to me in a flash. I hear a song or think of a recent event and they are there just waiting to be written. Very few are thought out and planned far in advance. This is the latter. I saw this one coming far before I began to write a blog or we knew anything about Pompe. I saw it coming the first time I watched her walk away. The strange thing is I encouraged her to do this twice. Both times I made a promise to always be there for her. The difference this time is she's not coming home for an afternoon snack and a nap. The first time was elementary school. This time it's college. During Emma's graduation party, a good friend of mine told me he realized some time ago th...
Experiences of a family along the journey of Pompe Disease.