Every breath you take
Every move you make
Every bond you break
Every step you take
I'll be watching you.
Every single day
Every word you say
Every game you play
Every night you stay
I'll be watching you. Before we had a chance to Google Pompe disease or enzyme replacement therapy, we were introduced to the word Pulmonologist. Now, I consider myself a well-educated man and I admit to a somewhat strange interest in the meaning of words so when these were tossed out I thought for sure I could use some grammar tricks and return with a definition in minutes. However, like many times to come I would discover that I had just entered a world which was not designed for quick answers and simple solutions. We had entered a new world we never knew existed nor expected to discover. While others my age would be focusing on their careers or favorite sports team, I would soon find myself very interested in something I thought...
Experiences of a family along the journey of Pompe Disease.