As I walk through
This wicked world
Searchin' for light in the darkness of insanity. I ask myself
Is all hope lost?
Is there only pain and hatred, and misery? And each time I feel like this inside
There's one thing I wanna know What's so funny 'bout peace, love and understanding? What's so funny 'bout peace, love and understanding? I believe in the power of the written word. At best words can increase understanding, offer enlightenment, and in some cases even bring healing. An increased understanding of Pompe Disease was my hope when Dr. Lisa Sanders first contacted us. I did not expect to also experience peace in my heart and love from strangers, but as usual Pompe always throws us a twist. A few months ago, Donna received a call from Dr. Rand at CHOP asking if we would be willing to share Maddie's story. She explained that there was this interesting writer for the New York Times who pens a column about medical mysteries and is also...
Experiences of a family along the journey of Pompe Disease.