Wednesday, January 20, 2010


To me, few things motivate like a football coach's pregame speech. It's the call of men into battle and the reminder that as a team we can achieve anything.

This past summer, I was very fortunate to join my son's football team coaching staff. After several practices and games the boys would chant the following pulled from a Georgia Tech football speech:

We're Gonna Fight,
til we can't fight no more.
Then we'll lie down
and bleed a while.
We're gonna get back up,
And fight some more!

Last summer I found that speech motivational, but mainly focused on 12 and 13 year old boys headed out to the Marsh Creek football field. One benefit of the movie "Extraordinary Measures" is the added awareness of Pompe Disease through the stories of patients from around the country. While some of the stories may be a tough read and do not represent Maddie's experience, each of them show an individual or family's faith and commitment to fight, get back up and fight some more.

I have thought a lot about sources of inspiration the past weeks. I've decided that those who quietly battle for their families, their friends, and, in this case, themselves inspire me. If you have time, please review the "Pompe In The News" section of this blog for some of these stories. Hopefully you too will be inspired.

All for one and one for all!
Matt Crowley


  1. “I firmly believe that any man's finest hour, the greatest fulfillment of all that he holds dear, is the moment when he has worked his heart out in a good cause and lies exhausted on the field of battle - victorious”
    Vince Lombardi

  2. A good coach will make his players see what they can be rather than what they are. Ara Parseghian, Notre Dame football coach