Wednesday, January 13, 2010

The Heart of Gold and the Grinch

I want to live,
I want to give
I've been a miner
For a heart of gold
It's these expressions
I never give
That keep me searching
for a heart of gold

This week Maddie and Mom had another visit to CHOP. This time is was for an electrocardiogram and echocardiogram.
According to my friends at WebMD, and electrocardiogram (EKG) checks for problems with the electrical activity of your heart by translating electrical activity into line tracings on a paper. An echocardiogram uses a hand-held device which transmits high frequency sound waves (ultrasound). These bounce off the heart structures, producing images and sounds that can be used to detect heart damage and disease.

It was good news all around. The heart is regular size, pumping normally, and shows no signs of thickening of the walls or gylcogen buildup (related to Pompe).

I'm not sure how you feel reading this, but the news made this Grinch's small heart grow three sizes that day!

Keep it up Maddie!

Thanks for the continued support,
Matt Crowley

Credit to: Neil Young, "Heart of Gold"


  1. Its a good thing we have a 40 foot pole.

  2. Every bit of good news is a reason to celebrate! Yea! The Williams

  3. The unthankful heart... discovers no mercies;
    but let the thankful heart sweep through the day and,
    as the magnet finds the iron, so it will find,
    in every hour, some heavenly blessings!
    Henry Ward Beecher

  4. That is great news! Thanks for continuing to share all of this with us. Our prayers are with your whole family. The Benders

  5. “Tears are the safety valve of the heart when too much pressure is laid on it.”
    Albert Smith

    I am glad That BOTH of your hearts are OK.

  6. Charles W. Chestnut (1858-1899)
    The workings of the human heart are the profoundest mystery of the universe. One moment they make us despair of our kind, and the next we see in them the reflection of the divine image.

  7. Roberta Sage Hamilton
    In our deepest moments of struggle, frustration, fear, and confusion, we are being called upon to reach in and touch our hearts. Then, we will know what to do, what to say, how to be. What is right is always in our deepest heart of hearts. It is from the deepest part of our hearts that we are capable of reaching out and touching another human being. It is, after all, one heart touching another heart.

  8. Just thinking about you today.

  9. “Be patient toward all that is unsolved in your heart and try to love the questions themselves. Do not now seek the answers, which cannot be given you because you would not be able to live them. And the point is to live everything. Live the questions”
    Rainer Maria

  10. Patience serves as a protection against wrongs as clothes do against cold. For if you put on more clothes as the cold increases, it will have no power to hurt you. So in like manner you must grow in patience when you meet with great wrongs, and they will then be powerless to vex your mind.
    Leonardo da Vinci