Though I've tried before to tell her
all the feelings I have for her in my heart
Every time that I come near her
I just lose my nerve as I've done from the start
Every little thing she does is magic
Everything she do just turns me on
Even though my life before was tragic
Now I know my love for her goes on The other day I was tidying up the basement and came across a book titled, Don't Sweat the Small Stuff...and it's all small stuff and it got me thinking about our last visit to CHOP. The philosopher in me gets the idea that you shouldn't worry about the little things in life because somehow life continues on past the day to day woes. To be honest, I've preached the same story to my kids over and over again when they would come home with concerns that those of use who are "older and wiser" have overcome without bumps or bruises. Just when I thought I had it all figured out, I learned at CHOP that every little thing Madd...
Experiences of a family along the journey of Pompe Disease.