Maddie's Mission

Blackbird singing in the dead of night Take these broken wings and learn to fly
 All your life
 You were only waiting for this moment to arise

 Black bird singing in the dead of night
 Take these sunken eyes and learn to see
 All your life
 You were only waiting for this moment to be free Blackbird fly, Blackbird fly
 Into the light of the dark black night. When our family arrived at yesterday's MDA Muscle Summit at the Camden, NJ Aquarium I unexpectedly felt comfortable.  A year ago we would have politely excused ourselves from a room filled with people facing muscular dystrophies and moved to the room with all the "normal" people.  At that time, we did not yet have Maddie's diagnosis and believed everything was going to be taken care of in short order so we could move on with our lives.  But, this is a new year and our new life so we entered the room, with my presentation in hand and hopes for a good day. As a young kid, I remember watching the MDA Telethon on...

Try to see it my way, Do I have to keep on talking till I can't go on? While you see it your way, Run the risk of knowing that our love may soon be gone. We can work it out, We can work it out. Life is very short, and there's no time For fussing and fighting, my friend. I have always thought that it's a crime, So I will ask you once again. Last Saturday morning I did what a busy dad rarely has time to do, sit on the sofa and watch TV.  Fortunately there were no morning games to run off to and the lawn told me it wanted to enjoy another day looking unruly.  As I clicked channel after channel I found  endless debates.  There were debates about politics, about the NFL, about the MLB playoffs, and even an informercial debate on which detergent will give you the whitest whites.  Did you ever notice these debates never end?  There's no need because there is always time for another argument.  However, when it comes to rare diseases there is only so much ti...