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Showing posts from April, 2013

The Sound of Silence

Hello darkness, my old friend I've come to talk with you again Because a vision softly creeping Left its seeds while I was sleeping And the vision that was planted in my brain Still remains Within the sound of silence "Fools", said I, "You do not know Silence like a cancer grows Hear my words that I might teach you Take my arms that I might reach you" But my words, like silent raindrops fell And echoed In the wells of silence It was late 1999 when I first found myself inside that dark, silent  place.  A few days before I suffered a Grand mal seizure, was taken to the hospital and told I had a foreign mass in my brain and that only a MRI could confirm what it was.  As I lay there, still as could be, my mind raced.  I was a young father with a potential life threatening diagnosis and all I could think about is having more time to be with my wife and watch my kids grow.  At the same time I was no fool.  I knew that my case did not look good and that the picture

I'm So Tired

I'm so tired, I haven't slept a wink I'm so tired, my mind is on the blink I wonder should I get up and fix myself a drink No, no, no. I'm so tired I don't know what to do I'm so tired my mind is set on you I wonder should I call you but I know what you would do You'd say I'm putting you on But it's no joke, it's doing me harm You know I can't sleep, I can't stop my brain You know it's three weeks, I'm going insane You know I'd give you everything I've got for a little peace of mind A few definitions: Pompe Disease  = Pompe disease is a rare inherited neuromuscular disorder that causes progressive muscle weakness in people of all ages. Mononucleosis  = a common illness that can leave  you feeling tired and weak for weeks or months. Pompe + Mononucleosis  = A nasty mix which leaves you with just one thing to say ...  I'm So Tired! Back in December 2009 I first mentioned Mononucleosis in the post  The