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Showing posts from March 12, 2011

Act Naturally

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They're gonna put me in the movies
 They're gonna make a big star out of me And all I gotta do is act naturally 



 I'm going to warn you right at the start that this post is not about Pompe. It's also not about neuromuscular disease, the folks at Genzyme, CHOP, or the MDA. It's the story of a proud dad and sometimes Grinch who's heart grew five times in one day watching Maddie Jane and her acting debut in Bye Bye Birdie. Each year our middle school puts on a musical.  A few months ago Maddie decided she wanted to try out and hopefully get a role.  After several viewings of the movie, studying lines, and practicing songs, she was ready for her big chance. That morning she walked into school a bit nervous hoping that she would do the right thing and hopefully see her name on the call back list a few days later.   Try-outs went well and a few days later she jumped into the car with a big smile on her face.  "I