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Showing posts from June, 2011

Once In A Lifetime

And you may find yourself living in a shotgun shack And you may find yourself in another part of the world And you may find yourself behind the wheel of a large automobile And you may find yourself in a beautiful house, with a beautiful wife And you may ask yourself-Well...How did I get here? Letting the days go by, let the water hold me down Letting the days go by, water flowing underground Into the blue again, after the money's gone Once in a lifetime, water flowing underground Wikipedia defines déjà vu as the feeling that one has already witnessed or experienced a situation. While I don't believe in previous lives, old souls, and all that stuff, I must admit to having that déjà vu feeling before.  While strange, it can be somewhat comforting especially when you try to figure out what to do next.  If I have been here before it must all work out, right?  Unfortunately, I could not find a definition for the feeling you have when you realize you have just

I Fought The Law

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Breaking rocks in the hot sun I fought the law and the law won I fought the law and the law won I needed money ‘cause I had none I fought the law and the law won I fought the law and the law won I left my baby and it feels so bad I guess my race is run She's the best girl that I ever had I fought the law and the law won I fought the law and the law won I'm not much for reality TV in general.  I try to shy away from the Real Housewives of Orange County, the Jersey Shore, the Bachelor, and especially Toddlers with Tiaras.  Seriously, what is up with those moms?  However I must admit once in a blue moon I've been captivated by Lock Up on MSNBC.  This is the show where they visit one crazy, scary prison each week and talk about life behind bars.  I usually cannot make it through an episode before I have to recheck all the locks, pull the covers over my head, and furiously count sheep before I head off to sleep.  So, you can imagine my fear when Donna mentioned a MDA fundr

Getting Better

I've got to admit it's getting better It's a little better all the time I have to admit it's getting better It's getting better Since you've been mine They say misery loves company.  Unfortunately, I’ve sometimes found this to be true when it comes to people facing the tough issues in life.  It is far too easy to play the victim and become bitter instead of looking the challenge in the eye and daring to fight on.  There’s no doubt that life with a chronic disease is not all wine and roses.  I see it in my own house when days filled with exhaustion or weakness can darken the brightest mood.  While I wish these days never came my daughters’ way, they will continue.  However, when those days arrive I ask them to get back up and remember a time when the light shined and filled them with hope.  Fortunately for our family, the sun always shines in Gainesville. About a year ago we took our first trip down to Gainesville, Florida to meet Dr. Barry Byrne.  Dr. Byrn