Monday, August 23, 2010

You Never Give Me Your Money / I've Got A Golden Ticket

Yesterday we received a letter from our insurance company detailing the costs for last month's Lumizyme treatments.  As I looked down at the amount we owe now that we've met our deductible, I reached for my insurance card, grabbed Maddie's hand, and became Grandpa Joe from Willy Wonka and the Chocolate Factory dancing and singing away to...

I never thought my life could be
Anything but catastrophe
But suddenly I begin to see
A bit of good luck for me

'Cause I've got a golden ticket
I've got a golden twinkle in my eye

I never had a chance to shine
Never a happy song to sing
But suddenly half the world is mine
What an amazing thing

'Cause I've got a golden ticket

I've got a golden sun up in the sky

And then I started to wonder what the insurance claims specialist must think when they receive yet another invoice from CHOP for those darn Crowley girls.  I imagine it goes something like this...

You never give me your money
You only give me your funny paper
and in the middle of negotiations
you break down

I never give you my number
I only give you my situation
and in the middle of investigation
I break down

It's clear that this little thing called Pompe Disease, like many struggles in one's life, can be viewed in different ways.  It can weigh you down, force you to question everything, embolden you to fight, or make you sing and dance.  While we have faced many feelings along the way, today Maddie and I were glad to be on the side of Grandpa Joe. 

'Cause I've got a golden ticket
I've got a golden chance to make my way
And with a golden ticket, it's a golden day

All the best,
Matt

Credit to:
Roald Dahl, "I've Got A Golden Ticket"
The Beatles, "You Never Give Me Your Money"