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Showing posts from April 30, 2010

Good Day Sunshine

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Good day sunshine Good day sunshine Good day sunshine I need to laugh, and when the sun is out I've got something I can laugh about I feel good, in a special way I'm in love and it's a sunny day Good day sunshine Good day sunshine Good day sunshine Waking up to a sunny day should have been the first indication that the girls' treatment was going to be ok.  You see we have had a cool spring this year with only the occassional warm, sunny day and this day looked to be a good one.  We woke the kids up early with the goal to reach CHOP by 10.  I worried the girls might be a bit hesitant, but I quickly realized this would not be a concern when Maddie screamed out a "Yeah!" when I told her it was the day for the first treatment.  I don't think Genzyme needs to make commercials for Myozyme, but if they do I have a spokesperson in mind. On the way down the PA Turnpike we received a call from the Day Medicine nurse making sure the "Crowley girl