Saturday, February 6, 2010

You've Got A Friend In Me

You've got a friend in me,
You got a friend in me.
When the road looks rough ahead,
And you're miles and you're miles from your nice warm bed.
You just remember what your old pal said,
Hon, you've got a friend in me!
Yeah, you've got a friend in me!

Who do you think of when I say the word "friendship"?
- Abbott and Costello, Batman and Robin, Bert and Ernie, Cheech and Chong, Gumby and Pokey, Barbie and Ken, Lenny and Squiggy, Oscar and Felix, Spongebob and Patrick, or Starsky and Hutch?
 
Perhaps it's her easy going attitude, fun loving spirit, or ease in connecting with others.  Whichever it is, Maddie is one of those kids who seems to make friends easily.  She is also one of the fortunate few to have friends she can confide in and share the strong friendships at her age when life is still innocent and filled with wonder.

This week she was blessed to add a new friend to the list.  A friend who she wasn't expecting and one with whom she shares a unique experience.  Thanks to the great folks at CHOP, Maddie was introduced to a girl her age in this area who also has juvenile / adult-onset Pompe.  Her new friend's name is Abby.  Her Pompe is also early stage, but she is three years ahead on the treatment experience.

We were pleased to hear from Abby's Mom that she was thrilled to get in touch with Maddie because she had not met any other girls her age with juvenile Pompe.  We are very excited for Maddie as the adventure with her new friend begins and that we can add Maddie and Abby to the definition of "friendship".  

And as the years go by,
our friendship will never die
You're gonna see
It's our destiny
You've got a friend in me

Here's to friends!
Matt

Credit to: Randy Newman, "You've Got A Friend In Me"