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Showing posts from January 22, 2010

The MRI in Funky Town

Gotta make a move to a town that's right for me, Town to keep me movin', keep me groovin' with some energy... Before Lipps, Inc. busted onto the music scene with the catchy lyrics and electronic pulse of Funky Town, I wonder if they were inspired by a late evening visit to CHOP's MRI Department. OK, you are saying..he's finally lost it...why am I reading this...and...I thought this was supposed to be about Maddie. So here's the story: Last night Maddie had her 7 PM MRI appointment at Children's Hospital of Philadelphia. Now, if you've been to a city hospital at night you expect to see some interesting things and we did. However, we did not expect Mr. Funky Town. More later... The doctors require a brain MRI prior to initiating the Myozyme treatments. According to our doctor at CHOP and neurology.org, strokes related to intracranial aneurysm have been reported in three late-onset Pompe patients so, while very rare, they run a baseline test to determine