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Showing posts from December, 2010

Changes

I watch the ripples change their size But never leave the stream Of warm impermanence and So the days float through my eyes But still the days seem the same And these children that you spit on As they try to change their worlds Are immune to your consultations They're quite aware of what they're going through Ch-ch-ch-ch-Changes Turn and face the strain Ch-ch-Changes Don't tell them to grow up and out of it Ch-ch-ch-ch-Changes Turn and face the strain Ch-ch-Changes Where's your shame You've left us up to our necks in it Time may change me But you can't trace time My Dad had a way of saying a lot with just a few words. When I would complain about the smallest change he would tell me, "It builds character." Once I became a teenager and figured it all out, my standard response became, "I think I have enough." Thankfully he repeated himself year after year. When I did not get accepted to my college of choice, the response wa

Imagine

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Imagine all the people Living for today Imagine all the people
 Living life in peace  You may say that I'm a dreamer But I'm not the only one It's not often that I think of life without Pompe anymore.  It is so woven into our daily lives that it seems like it has always been here.  I am used to helping Maddie with her violin case because it can become heavy, reminding Emma to be careful not to trip on the stairs, or watching Donna and the girls pack up and head out for yet another treatment. Pompe has become something which I never thought it would - - routine.  So, as I sat in New York City I was surprised to find myself thinking of life without it. Last Wednesday night I attended a company Christmas dinner at Del Frisco's Steakhouse in New York City with about fifty of my co-workers.  As I sat in my chair overlooking the Avenue of the Americas to the left and the Fox News building on the right something caught my eye that I had missed in the morn

If I Needed Someone

If I needed someone You're the one that I'd be thinking of If I needed someone If I had some more time to spend Then I guess I'd be with you my friend If I needed someone Did you ever meet someone out of the blue and just know you would be great friends?  I'm not quite sure why this happens.  Perhaps it is because of shared experiences, similar interests, or in my case someone's ability to tell a great story which usually ends with a punch line I never expected. Whatever the reason, the good thing is that it happens and after that moment your life is a bit better. Emma's Facebook page proves making friends is not a problem.  While all 369 of them are important, finding those special people with whom you can share your most private thoughts comes rarely.  Fortunately, she's been graced with a few who are so special we now consider them family.  They have traveled both smooth and rocky roads together and continue forward with inspiring dedication to ea