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Showing posts from November, 2010

In The End - Happy Anniversary

And in the end 
 The love you take 
 Is equal to the love you make November 18, 2010 is our anniversary.  It is one year after we received Maddie's diagnosis of Pompe disease.  Over the past of couple months I've thought a lot about this day and what it means to us.  I discovered it means much more than a medical milestone and much more than what a Hallmark anniversary card can cover.  It means “family” because without the five of us relying on each other, with the support from our family in California and Oregon we would not be in this place today.  It means “advocacy” because by being our girls’ advocates it’s been possible for them to see the best doctors and get the best treatments.  It means “courage and inspiration” because our girls have shown us how inspiring real courage can be.  It means “friendship” because of those who have stood by us when times were tough.  But, above all else it means “love” because of what we've learned about its power in our lives.  W

Clowns to the left of me, jokers to the right

Well, I don't know why I came here tonight
 I got a feelin' that something ain't right
 I'm so scared in case I fall off my chair
 And I'm wonderin' how I'll get down those stairs
 Clowns to left of me, jokers to the right
 Here am I stuck in the middle with you

 Yes, I'm stuck in the middle with you
 And I'm wonderin' what it is I should do
 It's so hard to keep this smile from my face
 Losin' control, I'm all over the place
 Clowns to left of me, jokers to the right
 Here am I stuck in the middle with you All the signs were there, but I tried to ignore them.  The warm days of summer turned blustery, the school buses suddenly appeared, the leaves turned colors, and the radio started to play songs about a big jolly man in a funny red suit.  Yes, it's Open Enrollment season.   Open Enrollment is that special time of year when companies give their employees the opportunity to make health care choices for the upcoming year.  It&#